We have a very unique opportunity to get to know and follow one brave little Friends of Karen child and his family. Luke just turned 5 years old in December and is currently in Pre-K. His mom, Nicole, is a teacher, his dad, John, works in sales, and he has a little sister, Grace, who is just a year and a half old. Luke and his family live in Rockland County, NY. They are a happy, unremarkable family, but for one thing… Luke is about to go through a bone marrow transplant (the 2nd in his short life).
Feb 11, 2017
Oct 06, 2017
My superhero is a kindergartener! Luke has completed his first month of school. Each morning he wears the biggest smile. He pops out of bed and proudly gets dressed ready to take on the day. It has become so clear how much he loves life... the children, learning and playing. Luke is 6 months post-transplant. We have hit a huge milestone and the thing that comes to mind is a rocket ship soaring into space. Luke had his clinic appointment and the news was bright enough to light up the sky. His numbers were given an A+. His myeloid engraftment was 100% (it was 14% before the transplant).
Aug 17, 2017
The best view comes after the hardest climb. We are approaching many milestones. On September 16, Luke will be 6 months post-transplant. My mind has already put aside so many of the frightening details that had taken over our life a short time ago. Did that really happen?
Jul 20, 2017
Jul 02, 2017
Before we left for Philadelphia my mind was overtaken by the most horrific thoughts imaginable and my body was moving through the motions without feeling. Everything that had happened over the last couple of years piled high and could top the highest mountain. My fears began to suffocate me. The last couple of weeks have extended themselves through an array of emotions. I felt victory for my little superhero. We are home. His body is listening to our prayers. All of these wonderful things I could not envision before we left were happening. It is a magical place to be.