The best view comes after the hardest climb. We are approaching many milestones. On September 16, Luke will be 6 months post-transplant. My mind has already put...
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It’s been several months since Luke’s bone marrow transplant and he’s now home recovering and growing stronger every day. We’ve heard a lot from...
Before we left for Philadelphia my mind was overtaken by the most horrific thoughts imaginable and my body was moving through the motions without feeling....
“Hope is the one thing stronger than fear.”
“Hope…sometimes that is all you have when you have nothing else. If you have it, you...
As a part of Friends of Karen's Birthday Program, we make sure that birthdays remain a happy occasion even in the midst of illness. We provide age-appropriate birthday gifts for every child in the...
The weeks are passing and we find ourselves waiting for Tuesdays to come. Now, every other Tuesday we make our biweekly trip to Philadelphia to meet with the...
“She made broken look beautiful and strong look invincible. She walked with the universe on her shoulders and made it look like a pair of wings.”...
"With every step I take I know that I'm not alone.
You take the home from the boy, but not the boy from his home.
These are my...
Everything could change in the blink of an eye. Two days ago we were racing to the hospital in a panic. Today we are leaving the hospital and dancing in the parking...
I remember how many times we did this when he was a baby. Take his temperature...another fever...grab a bag...race out the door. Which hospital do we go to?...Do we chance trying to make it to...
Thank you for the gifts! Friends of Karen always brings a smile to Luke’s face...the puzzles for Luke, my mom and Grace are a beautiful reminder of our family...
I am not quite sure what happened over the last few days since discharge. The day itself was a dream come true. We waited anxiously for that day to arrive. The...
We have been very lucky to go through this endeavor with Friends of Karen by our side. The emotional and financial support, as well as the general care and...
Luke is sleeping peacefully right now. It was a late night last night. His NG tube was acting up and consequently we are now on our 4th tube...puppy, fish,...
One moment disguised amongst a mountain of fear is enough to let us know how truly blessed we are. On Saturday, Luke came undone. He was overtired. He was...
We are at the top of the ferris wheel dangling and rocking. The last time I was actually in this position...I cried. I was afraid of being up so high and I was...
