Our journey has evolved into a roller coaster ride. Everything is up and down...the ANC, the eating, his emotions. We felt discouraged when the ANC went from 550...

This kid doesn't complain. He says he is fine. He tells me he is ok. I watched him throw up today, wincing in pain. I held his head over the bucket, his body...

Luke is not only a fighter, he is a lover and a charmer. He reached over, hugged me and smiled while whispering in my ear..."You are my hero." (This is something...

"What!? ..my hair"!!  For the last two days Luke had hair all over his sheets, pillowcase, in his eyes and in his mouth; however, when he looked in the mirror he...

We watch the lines, we wash our hands until they bleed, we wipe down EVERYTHING that comes in contact with Luke. We are careful!...because we have to be. We are...

The last two nights Luke was complaining of being itchy. The doctors gave him Benadryl. Luke has never had any problems with Benadryl but now it seemed to cause...

How could you not smile when you wake up to a little voice saying "cock-a-doodle-doo?" Despite the fact that Luke doesn't feel well he always wakes up with a...

Weekends in the hospital are always a bit sad. There is something about the weekday hustle and bustle that makes everything come alive. There was a lot of back and forth with the two little ones...

My body is shaking with the waiting. I left the room at 6:30 this morning. Kissed my sweet Luke and headed to the surgery reception to meet my baby girl! That is...

Meet Rhonda Ryan, LMSW and Director of Friends of Karen's Family Support Program. Rhonda is the Friends of Karen social worker working with Luke's...

Today started out with Luke refusing to take his medicines. Luke is no stranger to taking oral medicines. He has been taking them for years every night like a...

You start to lose track of days and time. It is constant and there is always a challenge around each corner. Luke was on Thiotepa for the last 2 days. He had to...

Grandma to the rescue! My mom, an angel in disguise, has been by our side every step of the way. She worked her special powers and magically Luke was sitting up...

They say it is normal. They know. I believe them but it will never be normal to me. The shaking, the pain, the fever, the heavy breathing...side effects of the ATG...
I can't help but compare last time and this time. When he was a baby it was so hard. Watching every single move he made to be sure he didn't tug on a wire. Holding him down for countless blood...

At 9 o'clock last night I hugged and kissed every inch of my beautiful Grace. I watched my little boy and my baby girl play happily together as they usually do....

I don't even know who I am right now. I am used to fighting. I am used to being ready to take on this battle. I am not used to feeling empty. I am so...

Luke with his teachers:

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After...All of our afters are over. After the new school year...After the holidays...After Disney....we will accept that this is happening. It is happening and we...

In preparation for his transplant, Luke has been working with Friends of Karen Child Life Specialist, Melissa Goldsmith:  ...