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Hard! Horrible! I look at these beautiful, happy innocent faces and ...we are just terrified!! ...

My handsome hero greeted me with his usual smile. We set off on a rather familiar ride to Philadelphia. As we sat waiting, Luke and I spoke about exactly what was going to happen during the...

When Luke was a couple of months old we began a journey. We could never have imagined the fight that was coming our way. After several trips in and out of the hospital, Luke was diagnosed with Chronic Granulomatous Disease. CGD is an immune disease. Luke’s immune system is unable to fight bacteria and fungus. The only cure for him is a bone marrow transplant.

Watch this video clip to see Luke and his family and learn more about their unique situation. This is a news story about Luke and his family that aired on CBS News in November 2015. Dr. Max Gomez reports.

We have a very unique opportunity to get to know and follow one brave little Friends of Karen child and his family. Luke just turned 5 years old in December and is currently in Pre-K. His mom, Nicole, is a teacher, his dad, John, works in sales, and he has a little sister, Grace, who is just a year and a half old. Luke and his family live in Rockland County, NY. They are a happy, unremarkable family, but for one thing… Luke is about to go through a bone marrow transplant (the 2nd in his short life).

 

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