Grandma to the rescue! My mom, an angel in disguise, has been by our side every step of the way. She worked her special powers and magically Luke was sitting up...

They say it is normal. They know. I believe them but it will never be normal to me. The shaking, the pain, the fever, the heavy breathing...side effects of the ATG...
I can't help but compare last time and this time. When he was a baby it was so hard. Watching every single move he made to be sure he didn't tug on a wire. Holding him down for countless blood...

At 9 o'clock last night I hugged and kissed every inch of my beautiful Grace. I watched my little boy and my baby girl play happily together as they usually do....

I don't even know who I am right now. I am used to fighting. I am used to being ready to take on this battle. I am not used to feeling empty. I am so...

Luke with his teachers:

...

After...All of our afters are over. After the new school year...After the holidays...After Disney....we will accept that this is happening. It is happening and we...

In preparation for his transplant, Luke has been working with Friends of Karen Child Life Specialist, Melissa Goldsmith:  ...

This event has passed

Buy Shamrocks to support Friends of Karen at the establishments listed below. More will be added - Check back often!! Thank you to all our partners!...

Hard! Horrible! I look at these beautiful, happy innocent faces and ...we are just terrified!! ...

My handsome hero greeted me with his usual smile. We set off on a rather familiar ride to Philadelphia. As we sat waiting, Luke and I spoke about exactly what was going to happen during the...

When Luke was a couple of months old we began a journey. We could never have imagined the fight that was coming our way. After several trips in and out of the hospital, Luke was diagnosed with Chronic Granulomatous Disease. CGD is an immune disease. Luke’s immune system is unable to fight bacteria and fungus. The only cure for him is a bone marrow transplant.

Watch this video clip to see Luke and his family and learn more about their unique situation. This is a news story about Luke and his family that aired on CBS News in November 2015. Dr. Max Gomez reports.

We have a very unique opportunity to get to know and follow one brave little Friends of Karen child and his family. Luke just turned 5 years old in December and is currently in Pre-K. His mom, Nicole, is a teacher, his dad, John, works in sales, and he has a little sister, Grace, who is just a year and a half old. Luke and his family live in Rockland County, NY. They are a happy, unremarkable family, but for one thing… Luke is about to go through a bone marrow transplant (the 2nd in his short life).