Days 43-48
April 24, 2017
I remember how many times we did this when he was a baby. Take his temperature...another fever...grab a bag...race out the door. Which hospital do we go to?...Do we chance trying to make it to...
Encouragement from Friends of Karen
April 21, 2017
Thank you for the gifts! Friends of Karen always brings a smile to Luke’s face...the puzzles for Luke, my mom and Grace are a beautiful reminder of our family...
Children’s Non-Profit Planning its Summer Gala
April 19, 2017

Friends of Karen, which supports critically-ill children and their families, will hold its summer gala benefit, Catch the Spirit! on Friday, June 2, 2017 at the...

Days 38-42
April 19, 2017

I am not quite sure what happened over the last few days since discharge. The day itself was a dream come true. We waited anxiously for that day to arrive. The...

Thank You Friends of Karen
April 14, 2017

We have been very lucky to go through this endeavor with Friends of Karen by our side. The emotional and financial support, as well as the general care and...

Days 35-37
April 13, 2017

Luke is sleeping peacefully right now. It was a late night last night. His NG tube was acting up and consequently we are now on our 4th tube...puppy, fish,...

Days 32-34
April 11, 2017

One moment disguised amongst a mountain of fear is enough to let us know how truly blessed we are. On Saturday, Luke came undone. He was overtired. He was...

Days 30-31
April 7, 2017
We are at the top of the ferris wheel dangling and rocking. The last time I was actually in this position...I cried.  I was  afraid of being up so high and I was...
Days 25-29
April 5, 2017

Our journey has evolved into a roller coaster ride. Everything is up and down...the ANC, the eating, his emotions. We felt discouraged when the ANC went from 550...

From Dad
April 3, 2017

This kid doesn't complain. He says he is fine. He tells me he is ok. I watched him throw up today, wincing in pain. I held his head over the bucket, his body...

Days 23-24
April 1, 2017

Luke is not only a fighter, he is a lover and a charmer. He reached over, hugged me and smiled while whispering in my ear..."You are my hero." (This is something...

Days 21-22
March 30, 2017

"What!? ..my hair"!!  For the last two days Luke had hair all over his sheets, pillowcase, in his eyes and in his mouth; however, when he looked in the mirror he...

Days 17-20
March 27, 2017

We watch the lines, we wash our hands until they bleed, we wipe down EVERYTHING that comes in contact with Luke. We are careful!...because we have to be. We are...

Days 15-16
March 24, 2017

The last two nights Luke was complaining of being itchy. The doctors gave him Benadryl. Luke has never had any problems with Benadryl but now it seemed to cause...

Days 12-14
March 22, 2017

How could you not smile when you wake up to a little voice saying "cock-a-doodle-doo?" Despite the fact that Luke doesn't feel well he always wakes up with a...

Days 9-11
March 20, 2017

Weekends in the hospital are always a bit sad. There is something about the weekday hustle and bustle that makes everything come alive. There was a lot of back and forth with the two little ones...

Cell Day 3-16-17
March 18, 2017

My body is shaking with the waiting. I left the room at 6:30 this morning. Kissed my sweet Luke and headed to the surgery reception to meet my baby girl! That is...

Social Worker Supports Family
March 17, 2017

Meet Rhonda Ryan, LMSW and Director of Friends of Karen's Family Support Program. Rhonda is the Friends of Karen social worker working with Luke's...

Day 8
March 16, 2017

Today started out with Luke refusing to take his medicines. Luke is no stranger to taking oral medicines. He has been taking them for years every night like a...

Days 5 and 6
March 14, 2017

You start to lose track of days and time. It is constant and there is always a challenge around each corner. Luke was on Thiotepa for the last 2 days. He had to...