Days 15-16
March 24, 2017
The last two nights Luke was complaining of being itchy. The doctors gave him Benadryl. Luke has never had any problems with Benadryl but now it seemed to cause him problems sleeping. He tossed all...
Days 12-14
March 22, 2017
How could you not smile when you wake up to a little voice saying "cock-a-doodle-doo?" Despite the fact that Luke doesn't feel well he always wakes up with a smile on his face. He is starting to...
Days 9-11
March 20, 2017
Weekends in the hospital are always a bit sad. There is something about the weekday hustle and bustle that makes everything come alive. There was a lot of back and forth with the two little ones that...
Cell Day 3-16-17
March 18, 2017
My body is shaking with the waiting. I left the room at 6:30 this morning. Kissed my sweet Luke and headed to the surgery reception to meet my baby girl! That is where we are now. Sitting, praying...
Social Worker Supports Family
March 17, 2017
Meet Rhonda Ryan, LMSW and Director of Friends of Karen's Family Support Program. Rhonda is the Friends of Karen social worker working with Luke's family: I met with Luke's parents, John and Nicole,...
Day 8
March 16, 2017
Today started out with Luke refusing to take his medicines. Luke is no stranger to taking oral medicines. He has been taking them for years every night like a superstar. It was hard, but he needed to...
Days 5 and 6
March 14, 2017
You start to lose track of days and time. It is constant and there is always a challenge around each corner. Luke was on Thiotepa for the last 2 days. He had to shower every 4 hours while awake and...
Day 4
March 12, 2017
Grandma to the rescue! My mom, an angel in disguise, has been by our side every step of the way. She worked her special powers and magically Luke was sitting up, playing one game after another. They...
Day 3
March 10, 2017
They say it is normal. They know. I believe them but it will never be normal to me. The shaking, the pain, the fever, the heavy breathing...side effects of the ATG. The not knowing - will it stay...
Day 2
March 9, 2017
I can't help but compare last time and this time. When he was a baby it was so hard. Watching every single move he made to be sure he didn't tug on a wire. Holding him down for countless blood draws...
Day 1
March 8, 2017
At 9 o'clock last night I hugged and kissed every inch of my beautiful Grace. I watched my little boy and my baby girl play happily together as they usually do. I just smiled. They will be together...
Easter-Passover
March 7, 2017
This spring, please help our Friends of Karen children and their families have an Easter or Passover holiday meal. Your donation of supermarket gift cards will help make this possible. Why gift cards...
Team Luke
March 7, 2017
I don't even know who I am right now. I am used to fighting. I am used to being ready to take on this battle. I am not used to feeling empty. I am so horrifically afraid that I just feel like a...
Last Day of School
March 6, 2017
Luke with his teachers: Luke with his teachers 3-3-17 Resized for Blog.jpg One of the little girls in Luke's class drew a picture of him playing in the mulch...and she said he was happy! one of the...
After...
March 2, 2017
After...All of our afters are over. After the new school year...After the holidays...After Disney....we will accept that this is happening. It is happening and we still do not want to accept it. Last...
March Sibling(s) of the Month
February 27, 2017
Johnny and Kiera are brother and sister. Johnny is 6 and Kiera is 8. They also have a new baby brother. They love playing and spending time together, and as many brothers and sisters do, they love...
Luke and Melissa
February 24, 2017
In preparation for his transplant, Luke has been working with Friends of Karen Child Life Specialist, Melissa Goldsmith: I have been working with Luke over the past several months helping to prepare...
Buy Shamrocks for Friends of Karen
February 23, 2017
This event has passed Buy Shamrocks to support Friends of Karen at the establishments listed below. More will be added - Check back often!! Thank you to all our partners! NEW YORK Purdys, NY The...
More Prep
February 17, 2017
Hard! Horrible! I look at these beautiful, happy innocent faces and ...we are just terrified!! Luke and Grace at hospital 2-16-17 Resized for blog.jpg Today was all about Grace. She stared at her...
5 AM: A Day to Prepare
February 16, 2017
My handsome hero greeted me with his usual smile. We set off on a rather familiar ride to Philadelphia. As we sat waiting, Luke and I spoke about exactly what was going to happen during the visit...