Meet Gavin
June 6, 2017
 
Gavin is 8 years old and loves to play soccer. He enjoys all types of card games and
...
Days 70-90
June 6, 2017
The weeks are passing and we find ourselves waiting for Tuesdays to come.  Now, every other Tuesday we make our biweekly trip to Philadelphia to meet with the...
Days 60-69
May 15, 2017

“She made broken look beautiful and strong look invincible. She walked with the universe on her shoulders and made it look like a pair of wings.”...

Days 50-59
May 5, 2017

"With every step I take I know that I'm not alone.

You take the home from the boy, but not the boy from his home.

These are my...

May Siblings of the Month
April 28, 2017
Zahir is 13 years old.  He loves to dance and listen to music.  He has that in common with his older sister Q-Aani, who he describes as his shield and protector.  At
...
Day 49 - Home
April 26, 2017
Everything could change in the blink of an eye. Two days ago we were racing to the hospital in a panic. Today we are leaving the hospital and dancing in the parking...
Days 43-48
April 24, 2017
I remember how many times we did this when he was a baby. Take his temperature...another fever...grab a bag...race out the door. Which hospital do we go to?...Do we chance trying to make it to...
Encouragement from Friends of Karen
April 21, 2017
Thank you for the gifts! Friends of Karen always brings a smile to Luke’s face...the puzzles for Luke, my mom and Grace are a beautiful reminder of our family...
Children’s Non-Profit Planning its Summer Gala
April 19, 2017

Friends of Karen, which supports critically-ill children and their families, will hold its summer gala benefit, Catch the Spirit! on Friday, June 2, 2017 at the...

Days 38-42
April 19, 2017

I am not quite sure what happened over the last few days since discharge. The day itself was a dream come true. We waited anxiously for that day to arrive. The...

Thank You Friends of Karen
April 14, 2017

We have been very lucky to go through this endeavor with Friends of Karen by our side. The emotional and financial support, as well as the general care and...

Days 35-37
April 13, 2017

Luke is sleeping peacefully right now. It was a late night last night. His NG tube was acting up and consequently we are now on our 4th tube...puppy, fish,...

Days 32-34
April 11, 2017

One moment disguised amongst a mountain of fear is enough to let us know how truly blessed we are. On Saturday, Luke came undone. He was overtired. He was...

Days 30-31
April 7, 2017
We are at the top of the ferris wheel dangling and rocking. The last time I was actually in this position...I cried.  I was  afraid of being up so high and I was...
Days 25-29
April 5, 2017

Our journey has evolved into a roller coaster ride. Everything is up and down...the ANC, the eating, his emotions. We felt discouraged when the ANC went from 550...

From Dad
April 3, 2017

This kid doesn't complain. He says he is fine. He tells me he is ok. I watched him throw up today, wincing in pain. I held his head over the bucket, his body...

Days 23-24
April 1, 2017

Luke is not only a fighter, he is a lover and a charmer. He reached over, hugged me and smiled while whispering in my ear..."You are my hero." (This is something...

Days 21-22
March 30, 2017

"What!? ..my hair"!!  For the last two days Luke had hair all over his sheets, pillowcase, in his eyes and in his mouth; however, when he looked in the mirror he...

Days 17-20
March 27, 2017

We watch the lines, we wash our hands until they bleed, we wipe down EVERYTHING that comes in contact with Luke. We are careful!...because we have to be. We are...