Day 4
March 12, 2017

Grandma to the rescue! My mom, an angel in disguise, has been by our side every step of the way. She worked her special powers and magically Luke was sitting up...

Day 3
March 10, 2017
They say it is normal. They know. I believe them but it will never be normal to me. The shaking, the pain, the fever, the heavy breathing...side effects of the ATG...
Day 2
March 9, 2017
I can't help but compare last time and this time. When he was a baby it was so hard. Watching every single move he made to be sure he didn't tug on a wire. Holding him down for countless blood...
Day 1
March 8, 2017

At 9 o'clock last night I hugged and kissed every inch of my beautiful Grace. I watched my little boy and my baby girl play happily together as they usually do....

March 7, 2017

This spring, please help our Friends of Karen children and their families have an Easter or Passover holiday meal. Your donation of supermarket gift cards will help make this possible.

Team Luke
March 7, 2017

I don't even know who I am right now. I am used to fighting. I am used to being ready to take on this battle. I am not used to feeling empty. I am so...

Last Day of School
March 6, 2017

Luke with his teachers:

March 2, 2017

After...All of our afters are over. After the new school year...After the holidays...After Disney....we will accept that this is happening. It is happening and we...

March Sibling(s) of the Month
February 27, 2017
Johnny and Kiera are brother and sister....
Luke and Melissa
February 24, 2017

In preparation for his transplant, Luke has been working with Friends of Karen Child Life Specialist, Melissa Goldsmith:  ...

Buy Shamrocks for Friends of Karen
February 23, 2017

This event has passed

Buy Shamrocks to support Friends of Karen at the establishments listed below. More will be added - Check back often!! Thank you to all our partners!...

More Prep
February 17, 2017

Hard! Horrible! I look at these beautiful, happy innocent faces and ...we are just terrified!! ...

5 AM: A Day to Prepare
February 16, 2017
My handsome hero greeted me with his usual smile. We set off on a rather familiar ride to Philadelphia. As we sat waiting, Luke and I spoke about exactly what was going to happen during the...
Mom's Introduction
February 14, 2017

When Luke was a couple of months old we began a journey. We could never have imagined the fight that was coming our way. After several trips in and out of the hospital, Luke was diagnosed with Chronic Granulomatous Disease. CGD is an immune disease. Luke’s immune system is unable to fight bacteria and fungus. The only cure for him is a bone marrow transplant.

CBS News Story
February 14, 2017

Watch this video clip to see Luke and his family and learn more about their unique situation. This is a news story about Luke and his family that aired on CBS News in November 2015. Dr. Max Gomez reports.

February Sibling(s) of the Month
February 13, 2017

Happy Valentine’s Day! ...

Meet Luke
February 11, 2017

We have a very unique opportunity to get to know and follow one brave little Friends of Karen child and his family. Luke just turned 5 years old in December and is currently in Pre-K. His mom, Nicole, is a teacher, his dad, John, works in sales, and he has a little sister, Grace, who is just a year and a half old. Luke and his family live in Rockland County, NY. They are a happy, unremarkable family, but for one thing… Luke is about to go through a bone marrow transplant (the 2nd in his short life).

More Time to Love
January 30, 2017

Friends of Karen founder, Sheila Petersen's aim was to give families with seriously ill children "more time to love."

You can't imagine how life changes in an instant...

Friends of Karen Names New Board Members
January 30, 2017
Friends of Karen, which supports critically-ill children and their families, has added two new members to its Board of Directors, New York...