Days 25-29
April 5, 2017

Our journey has evolved into a roller coaster ride. Everything is up and down...the ANC, the eating, his emotions. We felt discouraged when the ANC went from 550...

From Dad
April 3, 2017

This kid doesn't complain. He says he is fine. He tells me he is ok. I watched him throw up today, wincing in pain. I held his head over the bucket, his body...

Days 23-24
April 1, 2017

Luke is not only a fighter, he is a lover and a charmer. He reached over, hugged me and smiled while whispering in my ear..."You are my hero." (This is something...

Days 21-22
March 30, 2017

"What!? ..my hair"!!  For the last two days Luke had hair all over his sheets, pillowcase, in his eyes and in his mouth; however, when he looked in the mirror he...

Days 17-20
March 27, 2017

We watch the lines, we wash our hands until they bleed, we wipe down EVERYTHING that comes in contact with Luke. We are careful!...because we have to be. We are...

Days 15-16
March 24, 2017

The last two nights Luke was complaining of being itchy. The doctors gave him Benadryl. Luke has never had any problems with Benadryl but now it seemed to cause...

Days 12-14
March 22, 2017

How could you not smile when you wake up to a little voice saying "cock-a-doodle-doo?" Despite the fact that Luke doesn't feel well he always wakes up with a...

Days 9-11
March 20, 2017

Weekends in the hospital are always a bit sad. There is something about the weekday hustle and bustle that makes everything come alive. There was a lot of back and forth with the two little ones...

Cell Day 3-16-17
March 18, 2017

My body is shaking with the waiting. I left the room at 6:30 this morning. Kissed my sweet Luke and headed to the surgery reception to meet my baby girl! That is...

Social Worker Supports Family
March 17, 2017

Meet Rhonda Ryan, LMSW and Director of Friends of Karen's Family Support Program. Rhonda is the Friends of Karen social worker working with Luke's...

Day 8
March 16, 2017

Today started out with Luke refusing to take his medicines. Luke is no stranger to taking oral medicines. He has been taking them for years every night like a...

Days 5 and 6
March 14, 2017

You start to lose track of days and time. It is constant and there is always a challenge around each corner. Luke was on Thiotepa for the last 2 days. He had to...

Day 4
March 12, 2017

Grandma to the rescue! My mom, an angel in disguise, has been by our side every step of the way. She worked her special powers and magically Luke was sitting up...

Day 3
March 10, 2017
They say it is normal. They know. I believe them but it will never be normal to me. The shaking, the pain, the fever, the heavy breathing...side effects of the ATG...
Day 2
March 9, 2017
I can't help but compare last time and this time. When he was a baby it was so hard. Watching every single move he made to be sure he didn't tug on a wire. Holding him down for countless blood...
Day 1
March 8, 2017

At 9 o'clock last night I hugged and kissed every inch of my beautiful Grace. I watched my little boy and my baby girl play happily together as they usually do....

Team Luke
March 7, 2017

I don't even know who I am right now. I am used to fighting. I am used to being ready to take on this battle. I am not used to feeling empty. I am so...

Last Day of School
March 6, 2017

Luke with his teachers:

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After...
March 2, 2017

After...All of our afters are over. After the new school year...After the holidays...After Disney....we will accept that this is happening. It is happening and we...

March Sibling(s) of the Month
February 27, 2017
Johnny and Kiera are brother and sister....