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	<title>Newsletters Archives - Friends of Karen</title>
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		<title>Spring 2023</title>
		<link>https://www.friendsofkaren.org/spring-2023/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=spring-2023</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Fri, 28 Apr 2023 13:46:07 +0000</pubDate>
				<category><![CDATA[Newsletters]]></category>
		<guid isPermaLink="false">http://www.friendsofkaren.org/fokdev2022/?p=4751</guid>

					<description><![CDATA[<p><a href=http://www.friendsofkaren.org/fokdev2022/wp-content/uploads/2023/04/FoKnews-Spring-23-final-v2.pdf" target="_blank"><br />
Download</a></p>
<p>The post <a href="https://www.friendsofkaren.org/spring-2023/">Spring 2023</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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										<content:encoded><![CDATA[<p>The post <a href="https://www.friendsofkaren.org/spring-2023/">Spring 2023</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>A MOTHER’S STORY: Finding Help and Understanding</title>
		<link>https://www.friendsofkaren.org/a-mothers-storyfinding-help-and-understanding/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=a-mothers-storyfinding-help-and-understanding</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Mon, 17 Jun 2024 14:18:13 +0000</pubDate>
				<category><![CDATA[Family Stories]]></category>
		<category><![CDATA[Spring 2024 Newsletter]]></category>
		<category><![CDATA[What's New]]></category>
		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=8366</guid>

					<description><![CDATA[<p>Finest is a 20-year-old college student being treated for a recurrence of Synovial Sarcoma, a soft tissue tumor, that first occurred when he was 15 years old. His mother Melissa was interviewed about how Friends of Karen has helped her, Finest and his 18-year-old brother Malik.</p>
<p>The post <a href="https://www.friendsofkaren.org/a-mothers-storyfinding-help-and-understanding/">A MOTHER’S STORY: Finding Help and Understanding</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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							<p><em>Finest is a 20-year-old college student being treated for a recurrence of Synovial Sarcoma, a soft tissue tumor, that first occurred when he was 15 years old. His mother Melissa was interviewed about how Friends of Karen has helped her, Finest and his 18-year-old brother Malik.</em></p>						</div>
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<p><strong><img fetchpriority="high" decoding="async" class="size-medium wp-image-8448 alignright" src="https://www.friendsofkaren.org/wp-content/uploads/2024/04/finest-malik-297x300.png" alt="" width="297" height="300" srcset="https://www.friendsofkaren.org/wp-content/uploads/2024/04/finest-malik-297x300.png 297w, https://www.friendsofkaren.org/wp-content/uploads/2024/04/finest-malik.png 465w" sizes="(max-width: 297px) 100vw, 297px" />Connections: How has Finest’s treatment changed your daily life?</strong> <br /><strong>Melissa:</strong> After the first time Finest was treated, he went about his life and went back to high school. Later he graduated and went on to Hunter College in Manhattan to study anthropology and was living a normal life until he had a car accident in April 2023. After the accident he noticed pain in his leg and he was limping. He had an x-ray but that did not show any problem. My mother’s intuition kicked in and I insisted they give him an MRI, which showed a tumor in his knee This time my world came crashing in on me. When he was diagnosed at 15, the doctor told me that if the cancer came back it would need to be treated aggressively. Now he needed chemotherapy, radiation, knee replacement and femur reconstruction.</p>
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<p><strong>Connections: How did you find out about Friends of Karen?<br />Melissa:</strong> During this recurrence, the hospital social worker gave me a list of organizations to call for support. I found out that because Finest is 20 years old he was not in the age range of most organizations that serve kids up to 18 years old or adults 21 years old and over. I was relieved that Friends of Karen would accept someone his age.</p>
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<p><strong>Connections: How has Friends of Karen been there for your family? </strong><br /><strong>Melissa:</strong> I am thankful for everything Friends of Karen has done for our family. Without them, I believe I would have gotten into debt and not had some of my basic needs met. It was important that Friends of Karen was by our side because all our family is in Saint Lucia. Friends of Karen sent their social worker Rhonda to visit. She made sure that Friends of Karen helped us with groceries, transportation to treatment, and some of our monthly bills. I did not know Finest could get covered under Medicaid and Rhonda told me about it and helped us through the application process. Friends of Karen gave Finest some gift certificates for games and clothing for him to be comfortable. They even found a volunteer to coach Malik through writing his college essays and applications.</p>
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<p>Rhonda has been amazing in getting us whatever help we’ve needed. It’s been heartbreaking for me to see my six-foot tall, healthy son go through surgery and treatment. Rhonda understood I was struggling and arranged for Jane, a Friends of Karen creative arts therapist, to come see us. Jane really listened to what we were going through, and we worked on art projects to help us emotionally. And Rhonda encouraged me to participate in the parents’ virtual support group. It helps me to have hope when I hear other families that are going through this with good outcomes.</p>
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		<p>The post <a href="https://www.friendsofkaren.org/a-mothers-storyfinding-help-and-understanding/">A MOTHER’S STORY: Finding Help and Understanding</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>From our Executive Director</title>
		<link>https://www.friendsofkaren.org/from-our-executive-director/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=from-our-executive-director</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Wed, 17 Apr 2024 19:31:21 +0000</pubDate>
				<category><![CDATA[Newsletters]]></category>
		<category><![CDATA[Spring 2024 Newsletter]]></category>
		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=8472</guid>

					<description><![CDATA[<p>What Makes Friends of Karen Special? I am often asked what distinguishes Friends of Karen from other organizations that support critically ill children. This question usually follows: Is Friends of Karen like Make-A-Wish or Ronald McDonald House? While they are both great organizations with important missions, and Friends of Karen children and families utilize them, they do not offer the breadth and depth of services we do.</p>
<p>The post <a href="https://www.friendsofkaren.org/from-our-executive-director/">From our Executive Director</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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						<div class="elementor-element elementor-element-8ee0a1e elementor-widget elementor-widget-text-editor" data-id="8ee0a1e" data-element_type="widget" data-widget_type="text-editor.default">
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							<p><img decoding="async" class="size-full wp-image-1604 alignleft" src="https://www.friendsofkaren.org/wp-content/uploads/2022/08/Judy-Factor-10-19-15b.jpg" alt="" width="200" height="240" />I am often asked what distinguishes Friends of Karen from other organizations that support critically ill children. This question usually follows: Is Friends of Karen like Make-A-Wish or Ronald McDonald House? While they are both great organizations with important missions, and Friends of Karen children and families utilize them, they do not offer the breadth and depth of services we do.</p><p> </p><p>Friends of Karen’s starting point is that a child’s life-threatening illness affects every aspect of a family’s life. Forty-five years ago, when our founder Sheila Petersen set out on her selfless mission, she innately understood that each family has their own needs and that whatever help is provided must be tailored to those unique needs. This principle continues to guide us.</p><p> </p><p>That’s why Friends of Karen does not have a “one-size fits all” approach. We personalize our comprehensive support based on a family’s individual situation and address the impact of the illness on the whole family. This includes our special involvement with the sisters and brothers of ill children through our Sibling Support Program. Addressing their well-being deeply affects the family’s ability to cope during the health crisis and impacts their future whatever the outcome of the child’s illness. The article in this issue about mask making is an example of how our talented child life specialists and creative arts therapists support siblings.</p><p> </p><p>Another unique feature of Friends of Karen is that our support continues for the trajectory of the child’s illness, which can be months or years. Further, so long as a family resides in our tristate service area, our support follows the child, no matter if they are receiving the most promising treatment in New York City, Philadelphia, or Houston. Every Friends of Karen family is paired with an experienced, dedicated social worker who will guide them for the duration of the child’s illness, and if bereavement support, unfortunately, is needed.</p><p> </p><p>While Friends of Karen supports children with cancer (80+%), we also assist children with other life-threatening illnesses like sickle cell disease, organ diseases, various disorders, anemia, autoimmune and other serious illnesses. We often are the only organization that children with these other illnesses can turn to for help. Friends of Karen’s lifeline of support is available for children birth through age 21. This is important because many other organizations provide support through age 18 only or begin at age 21, so we make sure no child falls through the cracks.</p><p> </p><p> </p><p>The stories in this newsletter describe in real time what makes Friends of Karen special. Thank you for your support which makes all that we do possible. </p><p> </p><p>Wishing you a healthy and colorful spring!</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/from-our-executive-director/">From our Executive Director</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>SIBLING SUPPORT: Unmasking the Power of Self-Expression</title>
		<link>https://www.friendsofkaren.org/sibling-support-unmasking-the-power-of-self-expression/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=sibling-support-unmasking-the-power-of-self-expression</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Tue, 21 May 2024 17:18:33 +0000</pubDate>
				<category><![CDATA[All Content]]></category>
		<category><![CDATA[For Siblings From Siblings]]></category>
		<category><![CDATA[Spring 2024 Newsletter]]></category>
		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=8572</guid>

					<description><![CDATA[<p>The little children and teens that Friends of Karen Sibling Support Program professionals work with are carrying some big feelings. How can they not? They are experiencing unimaginable stress, change and worry. Those feelings are hard to talk about, but Friends of Karen’s four licensed creative arts therapists and child life specialists know from experience feelings will only grow if...</p>
<p>The post <a href="https://www.friendsofkaren.org/sibling-support-unmasking-the-power-of-self-expression/">SIBLING SUPPORT: Unmasking the Power of Self-Expression</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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							<p><img decoding="async" class="size-medium wp-image-8767 alignleft" src="https://www.friendsofkaren.org/wp-content/uploads/2024/04/masks-website-resized-300x241.png" alt="" width="300" height="241" srcset="https://www.friendsofkaren.org/wp-content/uploads/2024/04/masks-website-resized-300x241.png 300w, https://www.friendsofkaren.org/wp-content/uploads/2024/04/masks-website-resized.png 496w" sizes="(max-width: 300px) 100vw, 300px" />The little children and teens that Friends of Karen Sibling Support Program professionals work with are carrying some big feelings. How can they not? They are experiencing unimaginable stress, change and worry. Those feelings are hard to talk about, but Friends of Karen’s four licensed creative arts therapists and child life specialists know from experience feelings will only grow if kept inside.</p><p>Art is a natural mode of communication for children when words may not be there or may not seem enough. If asked directly “What are you feeling inside?” a child or teen will likely respond “I don’t know” or a similarly short answer leading to a dead end in the conversation. Give the same child some paints, a paper mask and maybe some emoji stickers and you can watch what they learn about themselves and their thoughts and emotions as they make art.</p><p> </p><p>Spanning centuries and continents, throughout art history, masks have been powerful tools for expression that are functional, metaphorical and fun. Friends of Karen professionals help ill children and their siblings by facilitating various mask making activities aimed at addressing their unique therapeutic goals.</p><p>During one-on-one therapeutic sessions that take place either in person or virtually, children explore the contents of a curated art bag provided by Friends of Karen and often reach for the masks as the material of choice.</p><p> </p><p>Art therapy activities are chosen to match each child’s specific needs. If a child has difficulty expressing themselves and seems to be keeping emotions bottled up, our professionals may guide them in creating an “inside/ outside” mask, showing what they show to the world and what they mask from others and keep inside. They may create a mask of a feeling that seems overpowering to others, a feeling they wish they felt more often, or their alter ego or their “true self.”</p><p> </p><p>Another approach may be to explore a child’s strengths with mask making, to follow the vein of positive psychology and focus on building what is strong as much as fixing what is wrong. The Friends of Karen professional might invite the child to create a mask answering the question “What is your superpower?” or highlight and celebrate character strengths. Mask making can also take the form of a self-portrait for an ego strengthening celebration of their uniqueness and worth in their family and in their world.</p><p> </p><p>Lastly, it is hard for any child to resist the fun and imaginative play that mask making invites. All the incredible children Friends of Karen serves deserve those moments of playfulness tenfold, and our highly skilled Sibling Support Program professionals understand the positive impact of providing opportunities for fun.</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/sibling-support-unmasking-the-power-of-self-expression/">SIBLING SUPPORT: Unmasking the Power of Self-Expression</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>A MOTHER’S STORY: Finding Consistent Support</title>
		<link>https://www.friendsofkaren.org/a-mothers-story-finding-consistent-support/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=a-mothers-story-finding-consistent-support</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Tue, 23 Apr 2024 20:05:01 +0000</pubDate>
				<category><![CDATA[All Content]]></category>
		<category><![CDATA[Family Stories]]></category>
		<category><![CDATA[Spring 2024 Newsletter]]></category>
		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=8739</guid>

					<description><![CDATA[<p>Ellis is a five-year-old boy who was diagnosed in 2023 with Acute Lymphoblastic Leukemia (ALL), a cancer of the blood and bone marrow. His mother Jennifer shares how the diagnosis and Ellis’s treatment affected her, her husband Eric, and their four-year-old son Jay. “During the summer of 2023 things were going along well for our family. My husband Eric had...</p>
<p>The post <a href="https://www.friendsofkaren.org/a-mothers-story-finding-consistent-support/">A MOTHER’S STORY: Finding Consistent Support</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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													<img loading="lazy" decoding="async" width="640" height="640" src="https://www.friendsofkaren.org/wp-content/uploads/2024/04/Ellis-Lentz-03-e1713902744465-1024x1024.jpg" class="attachment-large size-large wp-image-8742" alt="Ellis" srcset="https://www.friendsofkaren.org/wp-content/uploads/2024/04/Ellis-Lentz-03-e1713902744465-1024x1024.jpg 1024w, https://www.friendsofkaren.org/wp-content/uploads/2024/04/Ellis-Lentz-03-e1713902744465-300x300.jpg 300w, https://www.friendsofkaren.org/wp-content/uploads/2024/04/Ellis-Lentz-03-e1713902744465-150x150.jpg 150w, https://www.friendsofkaren.org/wp-content/uploads/2024/04/Ellis-Lentz-03-e1713902744465-768x768.jpg 768w, https://www.friendsofkaren.org/wp-content/uploads/2024/04/Ellis-Lentz-03-e1713902744465.jpg 1512w" sizes="(max-width: 640px) 100vw, 640px" />													</div>
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							<p>Ellis is a five-year-old boy who was diagnosed in 2023 with Acute Lymphoblastic Leukemia (ALL), a cancer of the blood and bone marrow. His mother Jennifer shares how the diagnosis and Ellis’s treatment affected her, her husband Eric, and their four-year-old son Jay.</p>						</div>
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							<p>“During the summer of 2023 things were going along well for our family. My husband Eric had just started a new job and I was doing well in my job as a physical therapist. Ellis got sick soon after, and there was a month of not having any answer to what was going on until a bone marrow biopsy came back conclusive for Leukemia.</p><p>Ellis’s diagnosis meant medical bills we weren’t prepared for, which in our case came with a complication. We were paying for our family’s health insurance out of pocket because we were on COBRA insurance until my husband’s benefits started at his new job. That meant neither of us could stop working completely during Ellis’s treatment.</p><p>Because this was a major issue, the hospital social worker encouraged us to apply to Friends of Karen for financial assistance. We had no idea that once we were connected to our Friends of Karen social worker Rhonda, they would be such an important support to us in so many other ways.</p><p>The best part of working with Rhonda is she calls often and it’s nice having someone that understands what we are going through. From the start she had a concrete list of things she knew we needed and was always a step ahead to predict what we would need next.</p><p>Friends of Karen helped with everything from working with us on applying to Medicaid for Ellis and arranging for Ellis to have a volunteer tutor so he was on track for kindergarten, to making sure we had gift cards to shop for Thanksgiving dinner and wrapping paper for the holiday gifts they provided for Ellis and Jay.</p><p>Rhonda had Melissa, a Friends of Karen creative arts therapist, work with Ellis for additional emotional support. Melissa also worked with Jay to help him understand what was happening in terms he could understand and help him with his feelings. Both boys also benefit from participating in the Friends Having Fun weekly virtual activity group since they have few chances to socialize while Ellis is immunocompromised.</p><p>Friends of Karen also makes a difference because they are with us for the long haul. We are thankful because, without Friends of Karen, we’d be struggling to make ends meet and I’d have to work more and not be able to be with Ellis. I think of Rhonda as our director of traffic to keep things going as smoothly as possible and she always has suggestions of how to handle things.”</p><p>— Jennifer</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/a-mothers-story-finding-consistent-support/">A MOTHER’S STORY: Finding Consistent Support</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>Thank You, Denise!</title>
		<link>https://www.friendsofkaren.org/thank-you-denise/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=thank-you-denise</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Tue, 28 May 2024 14:34:47 +0000</pubDate>
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		<category><![CDATA[Spring 2024 Newsletter]]></category>
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		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=9028</guid>

					<description><![CDATA[<p>For the past 25 years, Denise Tredwell has been Friends of Karen’s Volunteer Coordinator. Among her responsibilities, Denise has managed the gift programs, including Back-to-School, holiday Adopt-a-Family, and birthdays. She has worked with hundreds of wonderful people of all ages and backgrounds who generously give their time and talents in a multitude of ways to benefit the children and families...</p>
<p>The post <a href="https://www.friendsofkaren.org/thank-you-denise/">Thank You, Denise!</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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							<p><em>For the past 25 years, Denise Tredwell has been Friends of Karen’s Volunteer Coordinator. Among her responsibilities, Denise has managed the gift programs, including Back-to-School, holiday Adopt-a-Family, and birthdays. She has worked with hundreds of wonderful people of all ages and backgrounds who generously give their time and talents in a multitude of ways to benefit the children and families Friends of Karen serves. Denise knows how much this help matters because she was a Friends of Karen family when her son Josh was in treatment for a brain tumor. She has inspired countless volunteers with her passion for the mission and special understanding of the impact our support has on a family. Denise retired at the end of January, after wrapping up the 2023 holiday Adopt-a-Family program that filled the wish lists of 848 children. Looking back at her Friends of Karen career, she shared these reflections.</em></p><p><strong><br />Connections: Who introduced you to Friends of Karen? How were you helped?<br /></strong><strong>Denise:</strong> My sister found Friends of Karen for us. Josh was seven years old when we moved to Brewster. He had relapsed and we needed assistance. Susan Downes, then the Friends of Karen social worker, was beyond helpful. She got us equipment for Josh when he was in hospice care and arranged for important therapy to help us understand and cope with Josh’s illness. We even went to a special camp that was wonderful for Josh’s little sister, Sarah. Susan was always there to help us, no matter what we needed.</p><p><br />After Josh passed away in 1990, my husband Bruce and I, along with Sarah, participated in Friends of Karen’s bereavement group. This turned out to be an amazing experience for us. I did not expect all the ways Friends of Karen supported us during this difficult time.</p><p> </p><p><strong>Connections: How did you transition from a “family” to an employee?<br /></strong><strong>Denise:</strong> I had a job I loved at a project management firm when Susan Downes called to ask whether I would consider becoming the Volunteer Coordinator at Friends of Karen. How could I say no? That was in July 1998. The rest is history.</p><p><strong><br />Connections: How did your experience as a family influence your work with volunteers?<br /></strong><strong>Denise: </strong>Having been on the receiving end of Friends of Karen’s support, I was committed to making our help meaningful to the children and their families. I love that Friends of Karen isn’t a plain vanilla organization. We tailor our support to the needs of each family. I try to know each child as an individual by keeping track of what they like so their birthday or holiday gifts are what they want. I always express my appreciation to our volunteers to let them know how important their efforts are to Friends of Karen families. We can’t do it all without them!</p><p><strong><br />Connections: In 25 years, how have things changed? Are there some memorable moments?<br /></strong><strong>Denise:</strong> Our volunteers are as kind, compassionate and giving as ever. They always ask what they can do. We have three generations of volunteers in some families. Our volunteers are the best.</p><p><br />It’s the work that has changed most. Years ago, we needed volunteers to do huge mailings four times a year. They enjoyed the camaraderie of getting together and talking about Friends of Karen. Believe it or not, some of these volunteers are still involved, but now, most people are too busy working or pursuing other interests, so they want shortterm commitments. We’re working with more corporate groups that request a group project like putting together birthday bags or camp sacks for the children, or comfort bags for parents when they are with their hospitalized child.</p><p><br />My most memorable occasions were the annual Volunteer Recognition Dinners when we brought together volunteers of all ages. It was fun to recognize each person or group and applaud their efforts. We haven’t held a dinner since the pandemic. Hopefully they will be revived in the future.</p><p><strong><br />Connections: Are there words of wisdom you’d like to share?<br /></strong><strong>Denise:</strong> I always say Friends of Karen is the glue that held my family together. They had our backs and held us up. I can never repay Friends of Karen for what they did for my family. After 25 years, no matter how challenging my day at the office, when I walk out Friends of Karen’s door, I always feel so good about what we did for the families.</p><p><strong><br />Connections: Denise, enjoy your well-earned retirement!</strong></p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/thank-you-denise/">Thank You, Denise!</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>A MOTHER’S STORY:Finding Angels on Earth</title>
		<link>https://www.friendsofkaren.org/a-mothers-storyfinding-angels-on-earth/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=a-mothers-storyfinding-angels-on-earth</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Mon, 29 Apr 2024 18:44:24 +0000</pubDate>
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		<category><![CDATA[Spring 2024 Newsletter]]></category>
		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=9071</guid>

					<description><![CDATA[<p>Shameka is the mother of three: 14-year-old twins Ava and Amber, and their older brother Malachi, age 15. In 2023 Amber was diagnosed at 13 with Dilated Cardiomyopathy, a disorder in which the heart’s main pumping chamber is enlarged. Shameka shares how Friends of Karen has been there for her family. “Amber came to me complaining of chest pains which...</p>
<p>The post <a href="https://www.friendsofkaren.org/a-mothers-storyfinding-angels-on-earth/">A MOTHER’S STORY:Finding Angels on Earth</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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							<p>Shameka is the mother of three: 14-year-old twins Ava and Amber, and their older brother Malachi, age 15. In 2023 Amber was diagnosed at 13 with Dilated Cardiomyopathy, a disorder in which the heart’s main pumping chamber is enlarged. Shameka shares how Friends of Karen has been there for her family.</p><p>“Amber came to me complaining of chest pains which I thought were gas pains. When that did not go away, we went to the emergency room and she had some tests. The ER doctor arranged for her to be transferred to the children’s hospital where she was in the Intensive Care Unit. There, they found that only one of the four chambers of Amber’s heart was working, and her condition meant she needed a heart transplant to survive.</p><p>Before the transplant she needed two other surgeries, so many medications, and her care involved 23 doctors. At the time, I was working with patients as an anesthesia tech trainee in a hospital, but seeing your own child in the hospital with so many tubes in her was different and difficult. It was overwhelming but I knew I had to trust the doctors to help Amber, and she agreed to proceed with the surgery.</p><p>The hospital social worker could see that it was a lot to cope with, so I was referred to Friends of Karen. I was matched with their social worker Alyssa, who was amazing because she arranged for Friends of Karen to help pay my rent and telephone bill, and the kids got holiday gifts and school supplies. Having Alyssa there for me is like a friend that is always taking time to listen and give advice and never judges. That kind of caring takes a strong spirit and not everyone is built for that.</p><p>Without Friends of Karen, I would be more stressed, and we probably would have been put out of our apartment. After I completed their application, everything fell into place. With Friends of Karen, things happened quickly so I never got behind on my bills. I did not have to worry about food because they gave me gift cards to the supermarket where I shop. We also had other emotional support to help us cope from their child life specialist Jenn.</p><p>It is amazing to see how much the surgery has helped Amber. She is full of energy now, and she likes to spend time cooking and baking with her twin sister Ava. She’s back in school now, so things are getting back to normal.</p><p>I am thankful that Friends of Karen gave me peace in a troubled time while Amber was fighting for her life. They truly care about families and made sure I could focus on Amber, and it gave me time to be with my kids. Friends of Karen is truly like having angels on earth.”</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/a-mothers-storyfinding-angels-on-earth/">A MOTHER’S STORY:Finding Angels on Earth</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>Supporting His Family Through Uncertain Times</title>
		<link>https://www.friendsofkaren.org/supporting-his-family-through-uncertain-times/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=supporting-his-family-through-uncertain-times</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Tue, 08 Apr 2025 19:48:37 +0000</pubDate>
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		<category><![CDATA[spr25articles]]></category>
		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=13844</guid>

					<description><![CDATA[<p>Meet Ayden. When five-year-old Ayden fell in June 2024, he felt intense pain that was not helped by an over-the-counter pain reliever. His mother, Sandra, knew it was time to take him to the Emergency Room. </p>
<p>The post <a href="https://www.friendsofkaren.org/supporting-his-family-through-uncertain-times/">Supporting His Family Through Uncertain Times</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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			<h2 class="elementor-heading-title elementor-size-default">Meet Ayden</h2>		</div>
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							<p><img loading="lazy" decoding="async" class="size-medium wp-image-13867 alignright" src="https://www.friendsofkaren.org/wp-content/uploads/2025/04/ayden-alyssa-242x300.jpg" alt="" width="242" height="300" />When five-year-old Ayden fell in June 2024, he felt intense pain that was not helped by an over-the-counter pain reliever. His mother, Sandra, knew it was time to take him to the Emergency Room. Ayden was diagnosed with a Wilms tumor, a rare type of kidney cancer that affects children. The tumor on his right kidney had ruptured during the fall and Ayden needed surgery followed by a week of radiation, and weekly chemotherapy.</p><p> </p><p>Sandra is a single parent of Ayden and his two older sisters, Amanda (10) and Ariel (11). Before his illness, she worked full time as a coach at an employment service. Due to Ayden’s treatment schedule, Sandra couldn’t work as frequently, and the Brooklyn family’s life was shaken up in many other ways.</p><p> </p><p>In August 2024, Sandra spoke with Friends of Karen’s Intake Coordinator/ Case Manager Estel and was then paired with our Social Worker Alyssa. After hearing Ayden and his family’s story, Alyssa understood they were in serious need of assistance. Since Ayden’s diagnosis, Sandra’s need to curtail working that summer was a blow to the family’s stability since she is their sole provider.</p><p> </p><p>“When Ayden was diagnosed with a tumor in his kidney everything felt uncertain and I didn’t know how we could manage,” Sandra shared. “Thanks to Friends of Karen, my daughters and I have had incredible support throughout these months. Our social worker Alyssa has been a true lifeline. She has given us financial and emotional support over the six months, providing us with the tools we needed to navigate this journey.”</p><p> </p><p>While Sandra was able to work intermittently, Alyssa collaborated with her to develop a plan for Friends of Karen to assist with rent and car payments, which was important since she needed her car for work and Ayden’s medical appointments. Alyssa provided information on how to apply for the Supplemental Nutrition Assistance Program (SNAP) benefits and coordinated with other organizations to ensure they would not fall behind on their bills.</p><p> </p><p>Ayden received additional emotional support through Friends of Karen’s Sibling Support Program with Child Life Specialist Jennifer to help him build resilience and coping skills. Jennifer has engaged him in bibliotherapy (reading relevant books followed by an activity), worked to help Ayden name his feelings and how to express them, and discussed strategies to help him cope with visits to the clinic for bloodwork.</p><p> </p><p>Ayden is currently doing well and completed his treatment in December 2024. He has returned to school full time. “Alyssa and Jennifer’s care and understanding have meant the world to us,” Sandra said. “Friends of Karen helped us through unimaginable stress, and we will be forever grateful.”</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/supporting-his-family-through-uncertain-times/">Supporting His Family Through Uncertain Times</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>The Unique Challenges of Young Adults Facing Cancer</title>
		<link>https://www.friendsofkaren.org/the-unique-challenges-of-young-adults-facing-cancer/?utm_source=rss&#038;utm_medium=rss&#038;utm_campaign=the-unique-challenges-of-young-adults-facing-cancer</link>
		
		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Tue, 08 Apr 2025 20:45:42 +0000</pubDate>
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		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=13877</guid>

					<description><![CDATA[<p>Meet George. A cancer diagnosis in young adulthood disrupts a critical period of growth and independence. For many, this stage of life is defined by dreams of the future—beginning careers, exploring relationships, and stepping into self-sufficiency. But for young adults like George, a life-threatening illness changes everything. The desire for independence clashes with the harsh reality of needing to rely on others for daily support. Dreams are placed on hold, isolation becomes a constant companion, and guilt over not being able to support oneself can weigh heavily.</p>
<p>The post <a href="https://www.friendsofkaren.org/the-unique-challenges-of-young-adults-facing-cancer/">The Unique Challenges of Young Adults Facing Cancer</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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										<content:encoded><![CDATA[		<div data-elementor-type="wp-post" data-elementor-id="13877" class="elementor elementor-13877" data-elementor-post-type="post">
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			<h2 class="elementor-heading-title elementor-size-default">Meet George</h2>		</div>
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							<p><img loading="lazy" decoding="async" class="size-medium wp-image-13878 alignright" src="https://www.friendsofkaren.org/wp-content/uploads/2025/04/george-170x300.jpg" alt="" width="170" height="300" srcset="https://www.friendsofkaren.org/wp-content/uploads/2025/04/george-170x300.jpg 170w, https://www.friendsofkaren.org/wp-content/uploads/2025/04/george-579x1024.jpg 579w, https://www.friendsofkaren.org/wp-content/uploads/2025/04/george-768x1359.jpg 768w, https://www.friendsofkaren.org/wp-content/uploads/2025/04/george-868x1536.jpg 868w, https://www.friendsofkaren.org/wp-content/uploads/2025/04/george-1157x2048.jpg 1157w, https://www.friendsofkaren.org/wp-content/uploads/2025/04/george.jpg 1284w" sizes="(max-width: 170px) 100vw, 170px" />A cancer diagnosis in young adulthood disrupts a critical period of growth and independence. For many, this stage of life is defined by dreams of the future—beginning careers, exploring relationships, and stepping into self-sufficiency. But for young adults like George, a life-threatening illness changes everything. The desire for independence clashes with the harsh reality of needing to rely on others for daily support. Dreams are placed on hold, isolation becomes a constant companion, and guilt over not being able to support oneself can weigh heavily.</p><p> </p><p>George’s story is a poignant example of these challenges. In September 2022 at 22 years old, George was just beginning to build his life when he was diagnosed with High-Risk B-cell Acute Lymphoblastic Leukemia and Lymphoma. The diagnosis came after a seemingly minor car accident. While George initially felt fine, he later developed chest pain and difficulty breathing. An MRI revealed a mass, and a biopsy confirmed the diagnosis.</p><p> </p><p>For George, the impact was immediate and overwhelming. Before his diagnosis, he worked in a factory, saving money to move into his own apartment and pursue a more independent life. Now, those plans have been put on hold. Cancer treatments and their side effects, including high-dose steroids, have caused significant physical challenges, leaving George unable to work. He has undergone hip surgery and lost mobility in one arm, further limiting his ability to perform everyday tasks.</p><p> </p><p>Isolation has become a persistent challenge. George often spends days confined to his room, unable to engage with friends or maintain a social life. He feels the weight of relying on others for food, transportation, and help during hospitalizations. The dreams he once held close now feel out of reach, replaced by the immediate need to focus on his health and recovery. Despite these obstacles, George is incredibly insightful and self-aware. Though he is naturally shy and reserved, his sensitivity and kindness shine through. He finds joy in sending gifts to his siblings in Texas, maintaining a bond that brings him comfort and connection. His thoughtfulness and generosity are constant reminders of his enduring strength, even in the face of overwhelming challenges.</p><p> </p><p>Friends of Karen has played a vital role in George’s journey, providing the emotional support he needs to navigate this difficult time. Weekly calls with our Child Life Specialist Melissa gives George a safe space to share his feelings and process his experiences. These conversations have been a lifeline, helping him feel less alone and more understood as he faces the unique struggles of being a young adult with cancer.</p><p> </p><p>George’s journey highlights the many challenges young adults with cancer must overcome and the importance of organizations like Friends of Karen. Through tailored emotional and financial support, Friends of Karen ensures that young adults like George are not alone as they navigate this difficult chapter of their lives.</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/the-unique-challenges-of-young-adults-facing-cancer/">The Unique Challenges of Young Adults Facing Cancer</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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		<title>Sharing our Expertise with a Wider Audience Through Forbes</title>
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		<dc:creator><![CDATA[admin]]></dc:creator>
		<pubDate>Wed, 09 Apr 2025 02:31:50 +0000</pubDate>
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		<guid isPermaLink="false">https://www.friendsofkaren.org/?p=13904</guid>

					<description><![CDATA[<p>Friends of Karen was invited recently to participate in Forbes EQ (Equity Quotient) BrandVoice, a content marketing initiative. We are thrilled to have this opportunity, at no cost to Friends of Karen, to showcase the expertise of our talented team to a wider audience. This relationship with Forbes enabled us to develop and publish a series of articles for the...</p>
<p>The post <a href="https://www.friendsofkaren.org/sharing-our-expertise-with-a-wider-audience-through-forbes/">Sharing our Expertise with a Wider Audience Through Forbes</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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							<p><img loading="lazy" decoding="async" class="alignnone wp-image-13051 size-full" src="https://www.friendsofkaren.org/wp-content/uploads/2025/02/siobhan-forbes-3.png" alt="" width="928" height="531" srcset="https://www.friendsofkaren.org/wp-content/uploads/2025/02/siobhan-forbes-3.png 928w, https://www.friendsofkaren.org/wp-content/uploads/2025/02/siobhan-forbes-3-300x172.png 300w, https://www.friendsofkaren.org/wp-content/uploads/2025/02/siobhan-forbes-3-768x439.png 768w" sizes="(max-width: 928px) 100vw, 928px" /></p><p>Friends of Karen was invited recently to participate in Forbes EQ (Equity Quotient) BrandVoice, a content marketing initiative. We are thrilled to have this opportunity, at no cost to Friends of Karen, to showcase the expertise of our talented team to a wider audience. This relationship with Forbes enabled us to develop and publish a series of articles for the Forbes EQ BrandVoice website. The articles address a range of topics, including guidance on having difficult conversations with your children, advice on supporting parents through a child’s serious illness, how volunteering builds connections, sibling relationships, and more.</p><p>“While Friends of Karen supports families in acute distress, our approach has applications to everyday situations in any family,” Family Support Program Director Rhonda Ryan, LCSW said. “The depth of knowledge and experience on our staff of social workers, child life specialists, and creative arts therapists makes us well positioned to share practical advice with a broader audience of families.”</p><p>The following passage is an expansion of the advice shared in the online Forbes EQ article “How To Help Your Kids Express The Hard Stuff” authored by Friends of Karen Creative Arts Therapist and Sibling Support Program Coordinator Siobhan Casey, ATR-BC, LCAT. Parents may feel ill-equipped to deal with their children’s emotions, so they divert the discussion elsewhere or minimize their feelings. Validating children’s feelings is critical to their processing and coping. Our instinct may be to solve problems and downplay disappointment. Everyone wants to feel validated, and children are no different. We all would rather hear “That must be tough” than “Suck it up.” Providing validation allows children to process their emotions, which makes way for resilience and problem-solving. The goal is to raise children with high emotional intelligence who will be able to cope with conflict and loss throughout their lives.</p><p>Both ill children and their siblings are grappling with major changes and losses big and small. We often encourage parents to validate this whether the child has expressed this or not. Saying something like “I’m sorry this is happening but I’m here for you” can make a child feel understood and open up dialogue. Now you can brainstorm to help improve the situation together.</p><p>We invite you to read Friends of Karen’s articles on the Forbes EQ BrandVoice website, <a href="https://www.forbes.com/sites/forbeseq/people/friendsofkaren/" target="_blank" rel="noopener"><strong>click here</strong></a>.</p><p>Let us know your thoughts; your feedback is important to us. Please email us at: <strong><a href="mailto:info@friendsofkaren.org">info@friendsofkaren.org</a></strong>.</p>						</div>
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		<p>The post <a href="https://www.friendsofkaren.org/sharing-our-expertise-with-a-wider-audience-through-forbes/">Sharing our Expertise with a Wider Audience Through Forbes</a> appeared first on <a href="https://www.friendsofkaren.org">Friends of Karen</a>.</p>
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