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Friends of Karen Summer Tips

Rob Madrid — Wed, 24 Jun 2026 15:35:20 +0000

Summer is a season many families look forward to, but when you are caring for a child with a serious illness, the longer days and changing routines can bring unique challenges. Balancing medical appointments, treatments, and long hours at the clinic while trying to create joyful summer memories for all your children can feel overwhelming.

When school ends, parents may feel added pressure to maintain structure and find meaningful activities for siblings. At the same time, children with serious illnesses may feel disappointed or left out if they are unable to participate in certain summer traditions, camps, or gatherings because of health concerns or increased vulnerability to illness.

The good news is that there are plenty of ways to create a summer filled with fun, connection, and special moments for the whole family. Here are some ideas and resources to help seriously ill children and their siblings enjoy the season together safely.

Summer Camps

There are many summer camp programs designed specifically for children with serious illnesses and their siblings. These camps often provide medical support on-site and understand the flexibility families need when health circumstances can change unexpectedly.

Many camps offer opportunities for children to build friendships, gain confidence, and enjoy activities that are adapted to their individual needs.

Here’s a link to our recently posted resource about summer camps!

Community Resources

Your community may offer free or low-cost opportunities for families to enjoy together. These activities can provide fun, flexibility, and opportunities for siblings to connect.

Libraries

Local libraries often offer a variety of free summer programs, including story times, crafts, STEM activities, and special events for children of all ages. Many libraries also provide free museum passes that families can borrow to visit museums, aquariums, zoos, and other local attractions.

Be sure to check with your local library or bookstore for summer reading programs. Many offer incentives, prizes, and fun challenges that can keep children engaged throughout the season.

Libraries

Local parks, state parks, and recreation departments often provide family-friendly activities such as nature walks, wildlife programs, outdoor crafts, and guided hikes. Many programs can be adapted to different ability levels, making them accessible for a variety of needs and energy levels.

Urban Park Rangers and State Parks – provide recreational activities for families including hikes and wildlife management

https://www.nycgovparks.org/programs/rangers

Family Fun Nights

With the uncertainty that often accompanies a serious illness, creating opportunities to connect as a family can be especially meaningful. Here are a few simple ways to make lasting summer memories together.

A Good Old Fashioned Movie Night – Share a nostalgic classic from your childhood or even a movie marathon. Remember that show “Dinner and a movie?” Take some inspiration from the show and try out a theme. Does your child love Disney princesses or superheroes? Star Wars, Harry Potter or Lord of the Rings? Whip up a snack or meal to complement the film, dress up like the characters, duel with light sabers (or craft them) between movies,

Cooking Contest Night – Select three surprise ingredients and challenge each family member to incorporate them into a dish or snack. Taste-test together and award fun categories such as “Most Creative,” “Best Presentation,” or “Family Favorite”!

Get Creative – Sidewalk Chalk Painting: use old sidewalk chalk, crumble it up, place it in muffin tins, add water and you have sidewalk chalk paint! Paint on driveways and sidewalks! Make friendship bracelets, create family portraits together or come up with your own family crest or motto.

Camp Out at Home – Bring the adventure of camping to your backyard or living room. Set up a tent or build a blanket fort, read stories by flashlight, tell jokes, and enjoy favorite camping treats. The best part? Your own bed is only a few steps away.

Read Together – Snuggles and bedtime stories are some of the best moments of parenthood and childhood. Take it up a notch and form a family book club.

Family Photo Shoot – Gather old costumes, hats, and accessories and let everyone get creative. Have children style the adults and vice versa. Capture the fun with photos you’ll treasure for years to come.

Create a Summer Wish List – As a family, brainstorm activities and experiences everyone would enjoy. Some may be simple, like having a picnic in the backyard, watching a sunset, or making homemade popsicles. Creating a wish list together helps children focus on possibilities and gives everyone something to look forward to.

Energy-Friendly Activities for Children with Serious Illnesses

Summer fun doesn’t have to be high-energy to be meaningful. Many children living with serious illnesses experience fatigue, mobility challenges, treatment side effects, or restrictions that can make traditional summer activities difficult. The key is finding opportunities that allow children to participate at their own pace while still feeling included.

Here are a few low-energy, flexible activities that children and siblings can enjoy together:

Backyard Picnics: Spread out a blanket in the yard or even on the living room floor and enjoy lunch together in a new setting.
Water Play at Home: A small sprinkler, water table, bubbles, or even bowls of water and measuring cups can provide sensory fun without requiring a lot of energy.
Nature Scavenger Hunts: Create a simple list of things to spot from a porch, window, backyard, or short walk around the neighborhood.
Arts and Crafts: Painting, coloring, beading, scrapbooking, and other creative projects can be adapted to different ability levels and enjoyed from the comfort of home.
Virtual Adventures: Many museums, aquariums, zoos, and national parks offer virtual tours that allow children to explore the world from home.
Gardening Together: Plant flowers, herbs, or vegetables in containers or small garden beds. Watching something grow can be a rewarding summer project for the whole family.
Memory-Making Projects: Create a family scrapbook, summer journal, or photo album together. Invite siblings to contribute stories, drawings, and favorite memories.
Game Time: Board games, card games, puzzles, and family trivia nights offer opportunities for connection and laughter while accommodating a wide range of energy levels.

Remember that participation may look different from day to day. Some days a child may feel up to joining an activity for hours; other days, a few minutes may be enough. Following your child’s lead and focusing on connection rather than expectations can help create positive experiences for everyone involved.

A Few Final Reminders

Be mindful of the heat, stay hydrated, and remember that some children undergoing treatment may be more sensitive to sun exposure. Check with your child’s medical team about any precautions that may be needed, and don’t forget the sunscreen.

Most importantly, remember that meaningful summer memories don’t have to be elaborate. Sometimes the moments children remember most are the simple ones—laughing together, sharing a favorite treat, catching fireflies, roasting marshmallows, or spending time with the people they love.

We hope your summer is filled with connection, comfort, joy, and plenty of opportunities for your family to make special memories together.

The post Friends of Karen Summer Tips appeared first on Friends of Karen.

Friends of Karen Logo Unveils Refreshed Logo

Rob Madrid — Tue, 06 Oct 2026 16:49:52 +0000

For years, our balloons carried us forward. Today, we’re proud to introduce a symbol that captures who we’ve always been: a heart.

This heart represents the love, care, and commitment of our staff and supporters, and the strength, love, and resilience of the families we serve. Our look is changing, but our heart never will. Thank you for being part of it.

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Back To School Reentry Tips & Tricks

Rob Madrid — Fri, 14 Aug 2026 14:51:49 +0000

Back to school season has long been a busy time at Friends of Karen. For weeks employees and volunteers have been tirelessly working to fulfill school supply lists for our Friends of Karen children and their siblings. It is all well worth it when we receive photos of the adorable children smiling ear to ear with the wonderful backpacks of freshly packaged school supplies that have arrived at their doors. The goals behind the gift program are multilayered: to provide joy, normalcy and help alleviate parental stress by taking something off their plates. Our mission is always to provide support in any way we can.

Though the end of summer can be a bittersweet time for any child, children reentering school after being sidelined by a serious illness may have many mixed emotions that are more than just the typical butterflies. Going back to school can mark a return to normalcy – after an experience with cancer (or other serious illness) that felt anything but. While at first it may have been a little fun that “school” was a tutor coming to your house while you studied in your pajamas , that gets old quickly and children are often eager to return to their friends and welcome the opportunity to socialize. Just as it is normal to feel excited, feeling worried about anything from being teased to not being able to keep up physically and academically is also very typical, especially when “normal” has most certainly changed and shifted to a “new normal”.

Friends of Karen children share some worries they experienced when they returned to school after treatment :

Just going back to school in general
My friends not recognizing me
Students making fun of me for being bald
Looking different because my face is puffy from medications
Being sick and having to go home early
Not being able to make it to class on time
Missing school because of doctors appointments
Not being able to concentrate- “chemo brain”
Someone pulling my hat/wig off and everyone seeing my bald head
Not being able to participate in gym or recess

Friends of Karen Sibling Support Specialists have turned to the experts- veteran FOK children to share some advice for heading back to school. (We’ve added our own tips as well.)

Here’s what might help…

Have A Meeting Before You Return

Parents and children should meet with teachers, counselors, the school nurse or anyone else who the child will work closely with and help the transition go smoothly. Develop a plan to address any concerns or meet any physical, emotional and/or academic needs/accommodations.

Allow space to talk it out

While it may feel like pulling teeth at times to get your child to communicate, opening up space for them to talk about their feelings with loved ones is so important. Depending on the age of the child, you might use a book to spark discussion or ask prompting questions like “ I wonder how you are feeling about school starting…” Adding your own experiences can normalize challenging feelings: “I remember the first day of school being a little tricky for me some years. How are you feeling about it this year?” Remember to validate any feelings (i.e. Yeah, I can totally understand how you might be feeling nervous about school. I’m here for you. How can I help?”

Educate

There are ways big and small to bring illness education into the schools to ensure teachers/classmates/coaches/administration etc. understand what the child is going through physically, socially and emotionally. Maybe you are more private and would prefer a select few knowing your health status/treatment or perhaps your view is the more knowledge others have the more understanding and compassionate they will be. Whatever you decide, it is your choice.

Give permission for your Sibling Support Specialist or treatment team member such as a hospital Psychologist, Social Worker or Child Life Specialist to connect with the school. Julia, 16, says she would have liked for her teachers to have understood that while she was post treatment, she was still experiencing side effects and complications.

You may even consider sending a hospital care team member or a Friends of Karen, Sibling Support Specialist to the classroom to provide illness education and answer any questions your classmates might have. Friends of Karen Sibling Support Specialists have facilitated special activities and discussions on topics from anti bullying/kindness to practical knowledge of medical devices.

Reading a book to her class helped Sophia (then 8) feel better able to talk about her illness. Here are some of our favorites about cancer in general and school reentry(there are also great resources on specific cancers):

Taking Cancer to School
A kids book about cancer
Pierre the Penguin

Communicate How You Want Others To Treat You

Maybe you want your classmates to act like nothing has happened, or maybe you welcome talking about what you’ve been through. As long as you are safe and comfortable, it’s your choice. Often people don’t know how to act- having a teacher or other adult communicate your wishes can help put everyone at ease.

Find Your Go-To People For Support

Having a tutoring teacher from the same school helped Sophia because she was able to ask her questions and talk to her not only about academic things. Make a list of the adults you can go to for support. When you can identify your go-to supporters/mentors it can help you feel more confident and less alone.

Don’t forget your friends! Shania, 14, recommends seeking out your past friends and also making new ones.

Find Your Go-To People For Support

Depending on your child’s needs, they may qualify for:

A 504 Plan, which provides accommodations to help them access learning.
An Individualized Education Program (IEP) if cancer treatment has significantly affected learning and specialized educational services are needed.

Manage Fatigue

Expect that energy levels may vary from day to day.
Consider a shortened school day or gradual return if needed.
Schedule rest breaks and avoid overloading extracurricular activities at first.

Reduce Infection Risk

Remind your child to wash their hands often.
Ask the school to notify you if there are outbreaks of illnesses like flu or chickenpox.
Follow your oncology team’s guidance about when it’s safe to attend school, especially if blood counts are low.

Support Learning

Treatment can temporarily affect attention, memory, or processing speed.
Ask about classroom accommodations if needed, such as:
- Extra time for assignments or tests
- Reduced homework during treatment
- Copies of class notes
- Flexible attendance
- Access to tutoring or homebound instruction if necessary

Don't Forget About The Siblings!

Whether they verbalize it or not, often siblings of ill children feel less important, overlooked or even invisible. They may feel protective and concerned about their sibling but also think “What about me?” As parents/guardians it is important to remember that the start of the school year is a milestone for all children – filled with excitement, worries and butterflies . Check in with all your children and let them know that you are here for them whatever they are feeling.

Chances Are People Will Be Happy To See You

Camila, age 6, tells us that the love and the support that her friends and her teachers gave her when they saw her again helped. The day she came back to school everybody was so happy. Shania urges us not to be afraid. Everyone will accept you for who you are and what happened.

Listen To Your Brave Side And Remember To Have Hope

Our Friends of Karen veterans tell us to “try new things. Push yourself out of your comfort zone. Don’t get caught on your past and try to focus on the future.” Beginnings and new starts are usually a little bit scary- with time and support from others, you will thrive.

We hope that your school year is filled with special memories and the magic of childhood. Remember to work hard, be gentle with yourself and don’t be afraid to ask for help. Everyone at Friends of Karen wishes you a very happy Back to School!

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Supporting the Parent Behind the Ill Child

Rob Madrid — Mon, 28 Sep 2026 16:04:52 +0000

October is National Depression Education and Awareness Month

October is National Depression Education and Awareness Month, an opportunity to increase awareness of depression, reduce stigma, and encourage individuals experiencing emotional distress to seek appropriate support.

For parents caring for a child with a life-threatening illness, the emotional and psychosocial demands can be profound. A child’s diagnosis can disrupt family routines, employment, finances, relationships, and a parent’s sense of stability. Parents may also be required to navigate complex medical care while coping with ongoing uncertainty related to treatment and prognosis. These cumulative stressors can contribute to depression, anxiety, caregiver burden, anticipatory grief, and social isolation.

At Friends of Karen, social workers recognize that addressing the psychosocial needs of parents is an essential component of supporting the well-being of the entire family. Through ongoing, individualized support, social workers provide parents with a safe and supportive space to process emotional distress, identify coping strategies, navigate family and social challenges, and access appropriate resources. This comprehensive approach acknowledges that supporting parents’ emotional and psychosocial well-being is integral to strengthening the family’s capacity to cope with the challenges of a child’s serious illness.

Clinical Assessment and Emotional Support

Friends of Karen social workers assess the emotional, social, and environmental factors affecting a family’s ability to cope with a child’s serious illness. Through ongoing communication and a strong therapeutic relationship, social workers identify changes in emotional functioning, caregiver stress, coping capacity, family dynamics, and psychosocial needs.

When a parent share having symptoms of depression or significant emotional distress, the social worker provides a supportive and nonjudgmental environment in which the parent can discuss their experience openly. Through supportive counseling and therapeutic communication, social workers help parents process difficult emotions, identify existing strengths and coping mechanisms, and develop strategies for managing the psychological demands associated with their child’s illness.

The social worker’s consistent presence can be particularly important for parents who feel overwhelmed, isolated, or unable to prioritize their own emotional needs while caring for their child.

Strengthening Coping and Risilience

Social workers help parents identify and strengthen adaptive coping strategies while recognizing the extraordinary circumstances they are experiencing. Interventions may include emotional validation, active listening, problem-solving, normalization of stress responses, strengths-based interventions, and assistance with identifying supportive resources. Rather than focusing solely on the immediate crisis, social workers work collaboratively with parents to support their ongoing adjustment to the child’s illness and the changes it may create within the family.

Supporting the Parent Supports the Child

A parent’s emotional well-being is closely connected to the functioning of the family system.

When parents receive appropriate psychosocial support, they may be better positioned to remain emotionally available to their children, participate in medical decision-making, maintain family relationships, and navigate the demands of caregiving.

Friends of Karen therefore recognize that supporting a child with a life-threatening illness requires supporting the people who care for that child.

Friends of Karen social workers provide more than assistance with practical needs. They provide a consistent professional presence—assessing psychosocial needs, strengthening coping, supporting emotional regulation, facilitating access to additional services, and helping families navigate the profound emotional impact of childhood illness.

For parents experiencing depression, grief, anxiety, or overwhelming caregiver stress, knowing that someone is there to listen, assess, support, and help connect them to appropriate care can be an essential part of the family’s journey.

Bibliography

Kazak, A. E., Abrams, A. N., Banks, J., et al. (2015). Psychosocial Assessment as a Standard of Care in Pediatric Cancer. Pediatric Blood & Cancer, 62(S5), S426–S459. https://doi.org/10.1002/pbc.25730
1. Supports systematic psychosocial assessment of children with cancer and their families as a standard of care.
Kearney, J. A., Salley, C. G., & Muriel, A. C. (2015). Standards of Psychosocial Care for Parents of Children With Cancer. Pediatric Blood & Cancer, 62(S5), S632–S683. https://doi.org/10.1002/pbc.25761
1. Particularly relevant to your article because it addresses parental distress, depression, mental health assessment, and the need for ongoing psychosocial intervention and support.
Wiener, L., Kazak, A. E., Noll, R. B., Patenaude, A. F., & Kupst, M. J. (2015). Standards for the Psychosocial Care of Children With Cancer and Their Families: An Introduction to the Special Issue. Pediatric Blood & Cancer, 62(S5), S419–S424. https://doi.org/10.1002/pbc.25675
1. Establishes the broader evidence-based framework for psychosocial care of children with cancer and their families.
Jones, B., Currin-McCulloch, J., Pelletier, W., Sardi-Brown, V., Brown, P., & Wiener, L. (2018). Psychosocial Standards of Care for Children With Cancer and Their
Families: A National Survey of Pediatric Oncology Social Workers. Social Work in Health Care, 57(4), 221–249. https://doi.org/10.1080/00981389.2018.1441212
1. Especially useful for demonstrating the role of social workers in providing psychosocial support throughout the cancer trajectory.
Kazak, A. E., et al. (2015). Psychosocial Interventions and Therapeutic Support as a Standard of Care in Pediatric Oncology. Pediatric Blood & Cancer, 62(S5).
1. Supports the use of psychosocial interventions and therapeutic support to address psychological distress among children with cancer and their parents.
McTate, E., et al. (2021). Implementation of the Psychosocial Standards for Caregiver Mental Health Within a Pediatric Hematology/Oncology Program. Journal of Clinical Psychology in Medical Settings. https://doi.org/10.1007/s10880-020-09719-3
1. Provides additional support for assessing caregiver mental health and facilitating appropriate interventions within pediatric oncology settings.

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Holiday Adopt-A-Family

David Codella — Sat, 28 Sep 2024 12:50:00 +0000

Click here to view available profiles

Organize a toy drive

We are happy to shop for you

Help Friends of Karen deliver gifts and smiles for the holidays!

Grab your friends and your colleagues to help bring smiles to critically ill children and their siblings. Every child looks forward to the holidays but when parents are struggling to care for a child with cancer or another life-threatening illness, there’s no time for shopping or even thinking about the holidays or buying gifts. You can make sure Friends of Karen critically ill children, and their siblings experience the joys of celebrating the holidays.

Here’s how it works:

We ask parents to send us their children’s wish lists. Then a caring person like you “adopts” them by filling their wish list. You can choose to buy for one child or several children – it’s entirely up to you. We also like to send each family grocery gift cards of $50 or more to ShopRite, Stop & Shop, Target, Walmart, Visa, or MasterCard to help with their holiday meal.

Go shopping!

Once you have made your selection, fulfilled the wish list and are ready to ship the items to us, be sure to include a gift message with your last name/child id so that we can identify your items. Please make sure to attach activation receipts to any gift card purchases.

We welcome donations of gift wrap, tape, bows and holiday candy so parents can see what is sent and have the pleasure of wrapping the holiday presents.

Please remember you are making a meaningful commitment to provide gifts for your Friends of Karen child/children. If you cannot find the specific item on their wish list, please call us immediately.

Adopt-A-Family Drop-Off Deadline: December 1st

Toy Drive Drop-Off Deadline: December 8^th

Send checks and gifts to:

Holiday Adopt-a-Family c/o Friends of Karen;
118 Titicus Road; North Salem NY 10560

For more information or if you prefer to adopt without using the online system, contact:

Virgil Dantes or call Virgil at (914) 617-4054.

Long Island donors: Please call Lexi at 631-473-1768 ext. 903 in advance to schedule your drop-off at our office. This helps us ensure your contribution is received smoothly and efficiently.

Adopt-A-Family Drop-Off Deadline: December 1st

Toy Drive Drop-Off Deadline: December 8^th

Long Island Drop-Off Location:
150 Broadhollow Road, Suite 112
Melville, NY 11747

If you prefer that we do the shopping for you, we gratefully accept cash contributions designated for the Adopt-A-Family Program.

A gift of:

$100 will fill the wish list of one critically ill child.

$200 will fill the wish list of one critically ill child and their sibling.

$300 will fill the wish list of one critically ill child and their siblings.

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Mother’s Day 2024: More time to Mother

admin — Thu, 09 May 2024 11:04:04 +0000

The Friends of Karen Family Support Team develop strong bonds with the families they work with through the span of many months and at times years. Though every family is unique and we view each member of the family as special, the boundless love and strength of the mothers inspire our continuous and steadfast support. We know that so often the moms are the “motherships” of the families; leading, serving and meeting the needs of everyone. When a devastating diagnosis affects the family, it is our privilege to be the ones to offer them support so they have more time to love, more time to care and more time to mother.

This Mother’s Day we honor the fierce mama bear love we see from these inspiring women.

To the mothers in the early days of diagnosis and the trenches of treatment…

We see you spending long days and nights at the hospital…
countless doctors appointments…
the sleepless nights filled with worry…
the kissing of boo boos and the bear hugs…
finding moments of normalcy and happiness with your family…
Advocating for your kids…
Trying to make lemonade out of lemons…
Making sure that teeth are brushed and bellies are full and homework is done…
Making sure your children know how loved they truly are..

We celebrate you.

To the mothers of survivors…

We see you navigating a new normal and challenges…
Back to school..reentering routines…
Exhaling with relief while feeling the after shock of a most challenging time…
Infusing your children’s lives with celebration, joy and love…

We celebrate you.

To the mothers who are grieving…

We see the pain of your unimaginable loss…
We see how you honor the lives of your precious children and carry them in your hearts, always.
We see how you loved your child so well, and know that you will forever be their mother.

We celebrate you.

Joy and grief…frustration and peace… giggles and noise. All of it.

Motherhood and Mother’s Day kicks up a lot of feelings for so many. Thinking of those who for today is bittersweet or just plain hard- wishing you peace or comfort or whatever your heart needs. Miracles happen, pain softens and we’re all just trying to figure it out with as much grace and laughter as we can. The Friends of Karen mamas taught us that.

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Heroes Among Us Gala

admin — Tue, 06 Feb 2024 15:53:39 +0000

Friends of Karen invites you to join us at our “Heroes Among Us” gala on Friday, November 8, 2024 at Guastavino’s for a heartfelt celebration of the courageous children facing life-threatening illnesses, their families, and the dedicated staff, volunteers, and generous supporters who make our work possible. The event will be an inspiring night of stories, entertainment, and community spirit, as we come together to celebrate the heroes among us. Your involvement helps us to continue offering the essential support that these brave families need during their most challenging times.

For questions, please contact Leslie Bellissimo at LeslieBellissimo@friendsofkaren.org or call 631.473.1768 ext 904. We hope to see you on November 8^th!

Thank You to Our Sponsors

Title

Weitz & Luxenberg

Legacy

Olga & Steve Tenedios

Fearless

BDO USA, PC

Maria Karalis & Mark Gonsalves

Hero

Barhite and Holzinger

Holly & Howard Kurzrok

J & Jody Durst

MCP Property Management LLC

Palma Patti & Perry Cacace

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Jonathan Malawer

admin — Wed, 10 Aug 2022 17:55:28 +0000

Jonathan Malawer joined the board in January 2020. He wanted to become involved with a charitable organization that he found meaningful. He immediately connected with Friends of Karen. He found the organization’s work and contribution to the community incredible and personally related having lost his childhood friend Brian in 2010 to Leukemia.

Jonathan works in the asset management industry. He enjoys tennis, hiking, reading and exploring new places with his family and lives with his wife, daughter and son in New York City.

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Katonah Connect, The Meaningful Connections Issue November / December 2023

admin — Wed, 22 Nov 2023 15:24:39 +0000

The Meaningful Connections Issue November / December 2023

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Thank You

admin — Tue, 07 Nov 2023 15:30:44 +0000

We want to express our heartfelt gratitude to each and every one of you who celebrated our Friends of Karen 45th Anniversary Gala.

It is your generosity and commitment that allows us to continue our vital mission.

Your presence and support truly made the evening a memorable one!

Your dedication to our mission helps us to continue to provide financial, emotional, and advocacy support to hundreds of families each year. Without your unwavering support, we would not be able to reach as many families as we do.

We are honored to have had such a dedicated group of supporters join us to celebrate this incredible milestone. Together, we have accomplished so much, and we look forward to continuing our mission to support

children and families in need.

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