Category: All Content

Beautiful Bella and Linda – Making Spirits Bright

Children (and their families) battling serious illnesses like cancer are often described as “warriors’ ‘ and “fighters” conjuring up images of slaying dragons and knockouts in a boxing ring. Though these are certainly powerful and appropriate metaphors for the big, bold and resilient people we meet at Friends of Karen, equally inspiring are those who radiate a quiet beauty- selfless

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Katonah Connect, The Meaningful Connections Issue November / December 2023

When you walk up to the doors of Friends of Karen headquarters in North Salem, the first thing you might notice is their walkway – a “path of compassion” filled with several hundred dedicated bricks featuring loving messages and tributes from supporters. It demonstrates how this local organization has changed the lives of thousands by providing customized support for over 550 sick children and their families annually. Friends of Karen began in 1978 by Sheila Petersen, a friend of the MacInnes family whose 16-year-old daughter Karen was suffering from a rare genetic disorder.

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Sibling Grief Month

“The loss of a brother or sister is not small, unimportant or invisible.  In fact, it’s quite the opposite.  I call sibling loss the ‘loss of a lifetime,’ because who else do we expect to have relationships with that stretch our entire lives?” – Lynn Shattuck Worldwide Bereaved Siblings Month is an annual designation observed in November. The death of

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Thank You

We want to express our heartfelt gratitude to each and every one of you who celebrated our Friends of Karen 45th Anniversary Gala. It is your generosity and commitment that allows us to continue our vital mission. Your presence and support truly made the evening a memorable one! Your dedication to our mission helps us to continue to provide financial,

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Meet Cameron and Brinley

Brinley, age 9 and her sister Cameron, age 6, met with Friends of Karen Creative Arts Therapist Jane and created  “I am” posters. The “I am” posters helped to discuss who they are and if the cancer diagnosed changed any of these things. They agree they are still themselves despite all the changes happening in their lives and but sometimes

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How to Talk With Kids About Tragedies & Other Traumatic News Events

Television and newspapers today are filled with headlines about the tragic conflict with Israel and Palestine, and the brutal war between Ukraine and Russia.  In this very difficult time, children want to know what’s going on in the world and may be asking you questions about what they have heard discussed or seen in the media.  The American Academy of

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A Survivorship Story: Supporting the Transition After Treatment

Friends of Karen began a pilot program in late 2022 to continue to provide a limited number of supports to children who have gone off formal treatment, but continue to have serious healthcare, social and educational needs. Olivia’s mother Johanna shares more below about how Friends of Karen has helped her family during this crucial stage, after Olivia was treated

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Helping Children Understand Leukemia

Our Sibling Support Program team of four child life specialists and creative arts therapists knows that learning about an illness is different than understanding it. Often when illnesses are not explained to children in an age-appropriate manner they may fill in the gaps with their imaginations, creating stories that may be even scarier than the reality. To help ill children,

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Back to School Jitters, Tips and Tricks

Back to school season has long been a busy time at Friends of Karen. For weeks employees and volunteers have been tirelessly working to fulfill school supply lists for our Friends of Karen children and their siblings. It is all well worth it when we receive photos of the adorable children smiling ear to ear with the wonderful backpacks

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Sibling Spotlight: Brandon the Wonder

The feeling of support and connection between the families and staff is deep rooted and families will often look to the Family Support team as a lifeline in challenging times. This month’s very special Sibling Spotlight, Brandon, was only two years old when his older sister Melanie died after a long battle with cancer.

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A SIBLING STORY: Finding A Way Through Grief

Cooper, now seven years old, participated in the Friends of Karen Sibling Support program with creative arts therapist Siobhan. Cooper’s mother Joan shared that Friends of Karen’s ongoing support has been helpful as they grieve the loss of Cooper’s older brother Astor. Astor passed away at age eight after being treated for Childhood Cerebral Adrenoleukodystrophy, a progressive neurodegenerative disorder

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Mother’s Day 2023

The Friends of Karen Family Support Team develops strong bonds with the families they work with through the span of many months and at times years. Though every family is unique and we view each member of the family as special, the boundless love and strength of the mothers inspire our continuous and steadfast support. We know that so often

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A Mom Story: The gift of more time to care

Logan is a four-year-old boy who was diagnosed in 2022 with Aplastic Anemia, which is characterized by bone marrow failure when the body stops producing enough new blood cells. His mother, Elizabeth, a registered nurse, shares how Friends of Karen helped her, Logan and his twin sister Gianna, his older siblings Jayda and Jeremy, and his father Ismael as they

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Sibling Spotlight: Demario

In the height of the Covid pandemic, Demario’s then one-year-old brother, Kemario, diagnosed with Sickle Cell Anemia at birth, moved to New York with their mother, Sasha, to find the best treatment she could while Demario, age seven, remained in his home country of Jamaica with his father and extended family. Kemario underwent a bone marrow transplant and suffered repeated complications in its wake. As Sasha sat beside her youngest child throughout his treatment, Demario was unable to see his mother and brother for two years.

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Friends of Karen Celebrates Selection as an ACME GIVE BACK WHERE IT COUNTS Reusable Bag Program Beneficiary

North Salem, NY, May 1, 2023 – Friends of Karen was selected as the May beneficiary of the “ACME Give Back Where it Counts” program by store leadership at the ACME located in Goldens Bridge, NY. Friends of Karen will receive a $1 donation every time the $3.00 reusable GIVE BACK WHERE IT COUNTS Reusable Bag is purchased at this location during the month of May, unless otherwise directed by the customer through the Giving Tag attached to the bag.

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National Siblings Day: April 10, 2023

The more complicated the world seems to become the more excuses we look for to celebrate. Holidays and special days bring meaning, nurture connections and give us something to look forward to and hope for. Of course there are the famous ones filled with spooky costumes, trimmed trees and seder plates, but if you research thoroughly enough, you can find a special day for just about anything; National Peanut Butter and Jelly Day, Global Belly Laugh Day and in case you missed it January 11th was National Step in a Puddle and Splash Your Friends Day. Our favorite though, falls on April 10th – National Siblings Day- celebrating the very special bond of support, friendship and love shared between siblings. At Friends of Karen the sibling relationship is one especially close to our hearts. The Sibling Support Specialists at Friends of Karen, are dedicated Child Life Specialists and Art Therapists who provide emotional support and illness education to the ill child and their siblings. While working with the Friends of Karen children, we see firsthand the layered, multifaceted connection. We see fierce loyalty and protectiveness. We see the compassion, jealousy, the inside jokes and teasing, the joy and giggles.

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